HAEノート

HAEノート is a comprehensive mobile application designed to support individuals afflicted with hereditary angioedema (HAE) and their family members. It serves as a digital platform for meticulously tracking and managing symptoms associated with HAE, offering a proactive approach to dealing with this condition.

The app's primary feature is its symptom and quality of life (QOL) recorder, allowing users to document the onset and duration of seizures, photo evidence, site and intensity of seizures, any treatments undertaken, and premonitory signs. QOL assessments facilitate a deeper understanding of the condition's impact on day-to-day living.

Moreover, it aids in medication management through timely notifications, ensuring that users take their prescribed medicine at the correct intervals, which is crucial for managing HAE effectively.

Another instrumental feature is the retrospective analysis tool. This component empowers users to review past seizure activities and QOL data through easy-to-interpret graphs and images, enhancing communication with family and healthcare providers. The collated data can be transformed into detailed reports for medical consultations.

Additionally, this digital resource supports safeguarding family members by allowing the tracking of relative health histories and sharing test results. It includes educational assets to improve the understanding of HAE amongst relatives and peers.

In case of emergencies, the app offers a digital HAE card, ensuring quick access to critical treatment information for those around the user.

For enhanced convenience, registering as a member enables cloud data storage and report generation. However, the game remains fully functional without membership registration, with data being stored solely on the device.

Specifically targeted at residents of Japan, HAEノート provides a user-friendly, secure, and comprehensive tool for managing hereditary angioedema. By leveraging the game, users can expect an improved ability to monitor their condition, adhere to medication schedules, and share vital health information with the aim of achieving a better quality of life.